A blog about my life and Journeys
April 3, 2017
What have I learned this year?
Don’t take precious moments for granted!
Having a child who might not see or hear again, forces one to live in the moment–savor each sunrise and sunset, each sticky face, and pouty one too. Listen and remember the sound of voices, nature, laughter, and music. Remember and thank God for it!
Thankful that Miss Susannah’s Genetic Testing did NOT come back positive for NF1 or NF2. Not a likely candidate for Mosaic either. 💗
March 4, 2017
Friends,
I’m thankful for the amazing outpouring of love and faith that has been shown to Susannah and our family! 💗
February 1, 2017
Dearest Ones–Feeling truly humbled by the outpouring of love, faith, and prayers for my little lady and family!
As I swept outside a few days ago and pondered thoughts of successful people who have overcome very difficult obstacles kept running through my head.
At one point, it was as if a voice came into my mind and said, “Julie (Momma), would you deny your child the opportunity to struggle, climb, and overcome–and in the process draw close to her Heavenly Father and develop the characteristics that might serve her in this difficult world?”
I had to acknowledge that I was willing to take her pain but that it was not mine to take. God sent the Comforter and we will go forth in faith, “all is well, all is well.”
Update: Dear Friends, thank you! 💗
I felt your love and comfort today.
(Think Heavenly Father is still trying to teach me to accept help and love?)
Vulnerability is hard for me. Anyone else struggle with this?
Immediate answers may not be forthcoming but so thankful for the faith and kindness of others today. Sleep well!
Ever feel your life is spinning out of control and then…you learn you have a fatal illness with no cure, and then…you learn your child has an undiagnosed brain tumor, and then…you spent all weekend doing laundry, exhausted, only to have a late night flood (where the pipe splits and showers all that now wet and dirty laundry) and drips down the stairs and floor below kind night? Yeah. Just Be Held.
Jan. 23, 2017
Look what pretty lady tuned ten! Another tween.
