May 4, 2018
May the Fourth be with You!
Nurse Paige mentioned the nurses were holding a “Luke, I’m Not (Nacho) your Father!” Potluck Lunch. 🤣
These ppl are so much fun.
Glimpses of good things…
Love from shelter dog turned service dog, Willow. 💕
May the Fourth (Force) be With You! 🌒✨
Happy (Pre-)Cinco De Mayo!
Susie and her new hair-do!
(Promises her blue tipped hair if she met some of the Onc Requests. Hairstylist made it bright so it will wash and fade to a light blue—like Sus wanted.)
May 5, 2018
Driving home after 5:00 pm from Primary Children’s, my phone routed Sus and I through Heber and Provo Canyon.
Beautiful!
(Susie took the pictures.🌸)
May 18, 2018
Somber Friday (5/18/18)
Clinic crowded this morning.
Looking around there are many different ethnicities and backgrounds, cancer does not discriminate: wealthy, poor, dark and fair skinned, young and old.
Susannah alarms the blood pressure machine again. They get an acceptable reading once it is taken manually.
Susie is courageous through port access.
There is courage on the faces of so many of these children.
Winston, a darling Therapy Dog, patiently loves the children and gives them sloppy hand kisses in exchange for dog treats.
Patient Allergic reaction in Clinic:
FAST
Little pink-iced hair (prior to Chemo, now looking like a small tufted bird), Ryver, begins to scream.
(Tense voiced nurses calling out stats.)
“Heart rate 190, call Rescue Team”,
“IV Benadryl,” crying, vomiting,
“HR 205,” more vomiting,
“HR 215, 220,” oxygen started,
“respiration 44,”
Rescue Team arrives.
Curtain pulled more around Susie.
Crying slows, stops. Ryver sedated.
Silence.
Machines beeping,
Mother wails. Sobbing.
Praying.
Twenty people in hallway sized Clinic just beyond the blue fabric curtain pulled around Susie’s chair and IV machine.
Quiet.
Shuffling and whispers as adults exit.
No happy children mumblings.
Beeping sounds continue.
Susie has earbuds in, blissfully unaware.
No Reality ER Drama for her.
Grateful.
Praying again. Thankful Ryver and Mother okay.
Mother’s voice heard calling neighbor friend.
“Trey. Can I talk to your mom?” Listens to long explanation of toys and activities.
“Trey, I need to talk to your mom.
Ryver has a reaction and needs to stay overnight…” Mom now stuck at PCH while her five year old stays at a neighbors.
PTSD—I feel shaky and restless.
How can I hate Chemo so much when it is what we have to curse and “cure” these children?!
Susie and I wear our Temple Glass necklaces to remind us of the beautiful peace and promises made there.
Rush hour avoided once again by taking the pass thru Heber.
Home again!❤️
